At the moment I'm reading and hearing a lot about how 'normal' people are coping with this recent confinement because of the coronavirus. There are all these wonderful ideas and proposals to help with confinement and self isolation. Of course for them it's only temporary.
BUT for those of of us with M.E. or any other long term chronic illnesses the situation is permanent. We live in a whole different form of isolation.
My friend Shirls Chapman has written a great poem comparing the current pandemic versus M.E.
Pandemic v M.E.
Welcome to my world
All you normal happy folk
Welcome to my life
No this really isn’t a joke
In the days of this pandemic
Self isolation and doubt
This is how I live my life
Day in and day out
You are raring to go
As you do your morning burn
Your creative brains on fire
As you paint then pose and gurn
You put it all on Instagram
Looking for applause
We get washed and that is it
We can’t even manage clothes
Yay, you made it to week three
Now you’re getting really bored
Your ideas have all dried up
Your workout has been floored
You can’t be bothered getting dressed
All your roots are showing through
Try doing this for twelve years
Can’t imagine it, can you?
I have also written many poems about life with M.E. and in this blog I will share a couple of recent ones.
As full recovery from M.E. is rare it's like we have been given a life sentence.
Our confinement and self isolation is so completely different from what many healthy 'normal' people are experiencing right now.
Healthy 'normal' people can not imagine what it's like to live with M.E.
Only those who suffer the same can empathise.
So we have no choice but to live with this illness and adapt.
Please feel free to share my blog and poems - especially to healthy people!!
from the French Femme