QUESTIONS

Bonjour et Bonne Année 

This is my first blog for 2016. Yes I know we are already into February!
Where has the last month gone? 

I want to start this year with questions. 

When I first became ill I had many questions. For a start I did not know what was wrong with me and asked my doctor lots of questions but had no answers. Diagnosis took a long time but when it came I had even more questions!! The answers, however, were very limited. I had to look for the answers myself. 

At the time of my diagnosis I did not have the internet or any other help or support. I searched the answers to my questions in all the books I could find in the library and in my local bookshop. 

One book which I did find that helped me a lot and still helps me is by Doctor Anne Macintyre 'M.E. Chronic Fatigue Syndrome: a practical guide' and is explained very well in this video. 

Now I have access to the internet, many web sites and support groups. 
I have answers to some of my questions but not all. 

Questions still remain. 

No doubt everyone who is newly diagnosed will ask the same questions as me

                       Will I die?                         What is M.E.?

                        Is this it?                           What is to blame?

                        Please don`t lie                  It`s new to me

                        Just fix it!                           Don`t feel the same

Why me?                                                                                           Am I dreaming?

Why now?                                                                                         This can`t be real

M.E.?                                                  QUESTIONS                        I`m still breathing?

But how?                                                                                           Yet dead I feel                                                                           

How long will it last?

                                                                                    Will I recover?

                                                                                    I hope it ends fast

                                                                                    Or my life`s over     

                                     

                                                            How can you help me?

                                                            What is the treatment?

                                                            GET and CBT

                                                            Is all you present

                                   

                                                What else can you tell me?

                                                I need to learn much more

                                                Of this illness M.E.

                                                And what I have in store! 

?

So where to start when newly diagnosed? 

Some of the answers you can find here in advice for people newly diagnosed with M.E. or CFS. 

After fourteen years I don't know how or why I became ill. 

I still remain ill but I have not died.  Although sometimes I feel like I'm dead!

I have found ways to live with this illness but I have not been cured.  

I have tried CBT and GET and know that they do not help. 

I know a lot more about M.E. and try to help others. 

I know many have been ill longer than me and it can be a lifelong chronic illness.

Life is not the same but it goes on all the same. My life is not over yet.

I still have questions and I'm learning all the time. 

I hope this blog of mine helps others, especially those who have been recently diagnosed and feel overwhelmed.    

I hope that one day mine and your questions are all answered. 

Until then I will keep searching. 

A bientot
From the French Femme
xxx