Bonjour,
Today, the 8th August, is SEVERE and VERY SEVERE ME AWARENESS DAY
Although I don't have severe M.E. , I do have relapses where I become more severe. I worry that I will stay at that level. So I only have a taste of what it feels like to have severe M.E.
I can only imagine how it must feel to be at a severe or very severe level all the time. I have written some poems to try and express how that must feel.
This is one of them
Beyond Help
Alive but not living
Feel dead yet still breathing
In the dark I’m lying
And silently crying
I try to keep hoping
But nothing is helping
Doctors should be caring
But they’ve stopped visiting
With poor understanding
'Beyond help' they’re thinking
So nothing is changing
I’m left slowly dying
My days never ending
This prison enclosing
Abandoned, despairing
Isolated, waiting
Until my life is ending
Lotta became so ill that she sadly took her life.
How many more have done the same? How many more give up the fight? Suicide is a common cause of death of those with M.E.
Wendy Boutilier has done some amazing graphics and shared quotes for 8th August 2021. You can see them here on Facebook and here on her website
I accepted her invitation to write a quote. This is my contribution.
This neglect has to end. It's unacceptable that people should be abandoned and labelled as beyond help. Please join me and share as much information as possible today and every day.
Thank you
A bientot from the French Femme xxx
