Bonjour,
This is the continuing summary of the European Alliance Survey and Report. You can find part one here and part two here
This section is about
SUPPORT FROM HEALTH CARE, WELFARE, SCHOOLS AND PERSONAL CONTACTs
- answers differed across countries. ME/CFS patients generally felt that they received most support from family, other ME/CFS patients and patient organisations and least from the health care systems and social services
- men were more likely to have felt supported by families but also felt less supported by the welfare system, women found more support among other ME/CFS patients
- Norway was the least dissatisfied by health care support but even then only 17% felt that they received good or very good support, 65% said that they received little or no support
- social services (childcare services/ social worker) had the least support with no country having more than 10% who felt that they received good or very good support
- the workplace and schools/educational institutions were not seen to be supportive though large variations between countries
- ME/CFS patients felt let down by public institutions like public healthcare, social and welfare services and schools and educational institutions
- in most countries more than half of patients felt that they received good or very good support from the family
HEALTH CARE
- 94% had been in contact with their country's healthcare system, 74% had received little or no support, 12% reported good or very good support
SOCIAL SECURITY/ WELFARE
- among those who responded to the question about support from the social security(welfare) system 34% stated that they had received no support, 27% said that they had received little support, 3% felt that they had received good support
- significant correlation was found between poor experiences and a deteriorated course of illness
SOCIAL SERVICES
- about 65% had been in touch with the social services in their country, 66% said that they received no support, only 8% considered the support to be good or very good
WORKPLACE
- among the 60% that answered the question about support in the workplace, 42% stated that they received no support, 23% stated that they had received good or very good support
SCHOOL/EDUCATIONAL INSTITUTIONS
- response came from 28% of adolescents and young adults, 45% said that they had received no support, 21% had received little support, good support in schools was 3% and 14% in universities
FAMILY
- most answered this question, 60% stated that they received good or very good support from families, 25% had little or no support
FRIENDS
- 92% answered this question, in general the support is much lower than the family, 40% had little or no support, 34% felt that they had good support
OTHER ME/CFS PATIENTS
- about 70% had been in touch with other ME/CFS patients, 56% stated that they received good or very good support
PATIENT ORGANISATIONS/CHARITIES
- 71% answered this question, 42% stated that they had received good or very good support, 29% had received little or no support
I hope this makes sense and helps you. There's still one more section to go!
Au revoir
The French Femme
xxx
