Bonjour,
As we arrive into May awareness week 2023 I realise that I've been writing poetry about living with M.E. (Myalgic Encephalomyelitis) for ten years now.
A lot has also happened to me personally in those ten years.
Although in 2013 I was not unfamiliar with writing poetry I wanted to start writing about me and my illness.
This was, I believe, the start of an amazing feat on my part. I had to overcome all the obstacles linked to M.E. It was to become a very difficult process and one that I wanted to abandon at times. It was a slow learning process with pitfalls and successes. Sometimes it was the cause of relapses. But sheer determination and will power has kept me going. I've been faced with criticism but at the same time I've received some lovely comments and support.
In the last ten years I've
- written hundreds of poems about living with M.E.
- written many other poems, some even in French
- I've written over 100 blogs
- I've self published 7 books of poetry on Amazon
- I've set up a page on Facebook
- I've shared my poetry, blogs and books over many social media sites
- I've taken part in some interviews
- I've recorded a podcast about me and my life with M.E.
The caravan
In 2014 we started this adventure living in a caravan. At first I loved it and enjoyed seeing new places and relaxing on the campsites. One even had a lovely swimming pool which I was able to profit from.
However, things soon started to go badly wrong. My ex husband had been diagnosed with Bipolar Disorder and life was hard with him. He often developed problems with people and work situations. He couldn't handle stress very well but neither could I. Every time there was a problem we had to move on to a different camp site. During 2014 we stayed in three different camp sites. The caravan proved to be expensive and there was always something to be fixed or repaired. That added to the stress for both of us. Despite this I made the best I could of the situation. What's more I continued to write poetry and blogs.