There could be a combination of reasons for this. Perhaps you can identify with any or all of the below
- you lose contact with family and friends who don't understand your illness or who don't know what to say or do.
- you may become bed bound or house bound and are no longer able to leave the house.
- you are unable to work.
- you are no longer able to socialize.
- you are too ill to spend long on the phone, if at all
- you may be too ill to write letters
- you may not have access to a computer
- you may be too ill to spend a lot of time on the internet
- you may live in an isolated place and are unable to drive or use public transport
- you live alone
Why? Simply because I had computer problems and for nearly two weeks I was without one. I lost contact with my friends and family. I lost all the help, friendship and support I find on a daily basis through my computer. Most of it is on face book where I have built up over many years a wonderful network of friends who make all the difference to my life. Without it I felt totally lost, had withdrawal symptoms, felt lonely and started to feel depressed. I had other things I could do and took to writing more poems. But I missed that contact.
Thankfully I have now resolved my computer problems but it has made me think and realise how my life has changed and how I am dependant on my computer and this virtual world I have created.
I have written a poem about being isolated
Isolated
From
all I know
From
all I love
Fills
me with woe
Isolated
From
family
Don`t
understand
Or
visit me
Isolated
As
friends I lose
Living
alone
Now
a recluse
Isolated
Now
friends `online`
Virtual
world
Eases
my time
Isolated
Sick
and in pain
My
life now changed
Nothing
the same
Isolated
And
so lonely
I
cry some tears
Thinking
“If only”
Isolated
Each
endless day
In
these four walls
I
have to stay
Isolated
I
hope and pray
I
can escape
And
get away
Isolated
Watching
outside
Through
my window
Life
that`s not mine
Isolated
Behind
a veil
Trapped
inside
Just
like a jail
So what can you do to avoid isolation?
Of course without recovery to full and normal health it's hard not to feel isolated and there is only so much we can do.
Here's my list of suggestions that may help you to feel less isolated and lonely
- sign up to face book or any other online forums relating to your illness as it helps so much to find others who suffer the same
- find and join a local support group in your area
- when you feel well enough arrange to have a chat with a friend or a member of your family who understands and is sympathetic, as even five minutes can lift your spirits
- write a short letter if you are able and maybe you will receive one in return
- if you feel well enough go out but plan and make sure you have rests before and afterwards
- if you feel well enough arrange for a friend or family to visit for a short while but don't be afraid to ask them to leave
- I find listening to the radio or the tv helps me
Maybe you have other suggestions. I would love to hear from you.
Meanwhile, as in the photo above, this caterpillar has found her wings and can fly away from isolation.
A bientot from the French Femme
xxx
I love this poem. I've got M.E. and that I love riding the and talking with other riders... even when I have no other reason to ride :)
ReplyDeleteWalter Irvine blogs collections of observations and amusing stories based on real experiences, as far as you know. You may read his posts on Walt's Inquisitive Ramble at: http:/www.waltsinquisitiveramble.blogspot.com
Gr8 poem Ros, I too describe myself as a recluse, but i often wonder if things would've been different if M.E hadn't struck, its hard to know if its been bought on by the limitations or wether i would've been an unsociable bugger anyway lol! I'd like to think i would be sociable given the chance. I think you've listed everything possible, its important to have something that you can do by yourself, like you I obviously write and make music, the garden is a source of pleasure too on the rare occassions i can pull a few weeds, I cant imagine what it must be like for someone that doesn't have a hobby, or worse doesn't have a computer. I have a friend who i write too, lives by himself and doesn;t have telly or computer. I would go nutz for sure.;) xxx
ReplyDeleteThank you. I was a fairly sociable person before becoming ill and enjoyed being with friends or family. That world has slowly diminished. Although I have things to occupy me and my time I would love sometimes to just go out like before and meet friends. I agree that without my writing and my computer I don't know what I would do xxx
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