To be honest, pain has not always been a major symptom, apart from when in major relapse. However it has recently become more of a problem for me. Just before and during my stay in hospital I`d developed chronic pain in my neck, shoulders, back and spreading into my arms. It became unbearable. I don`t mind saying that it made me cry.
So what had I done to bring on such pain? Well I`d pushed myself to try and carry out activities of pleasure - like a `normal` person. That was a big mistake! The result was chronic pain.
How do people cope with chronic pain on a daily basis? How do you assess and rate your pain? In hospital I had to fill in lots of forms and evaluate my level of pain every day like this...
There are lots of words to describe pain. I used some of them in my poem here..
So much pain
How do you describe your pain?
What helps you with your pain?
In the pain clinic I was given some tips for dealing with chronic pain. However, like many with M.E. I am sensitive and intolerant to many medications so I am left with paracetamol or ibuprofen.
They gave me a heated linseed compress which helped with my pain. So I have now purchased one for use at home.
I was also introduced to a Tens machine which I am going to try using on a regular basis to see if it makes a difference. What have I got to lose?
Otherwise I will have to be more aware of any activity that will increase my pain levels. I will have to plan before and afterwards so as to avoid the crisis of pain. I have to learn to live better within my limits and not push those limits.
My stay in hospital has helped me to review my options and think about pain along with all my other symptoms. So it was on the whole a week well spent.
Do you have any other tips or advice? I would love to hear from you.
From the French Femme xxx