tag:blogger.com,1999:blog-8139456428769690123.comments2023-09-22T15:52:15.541+01:00My A-Z of M.E. (Myalgic Encephalomyelitis) French femmehttp://www.blogger.com/profile/16814891305960111979noreply@blogger.comBlogger173125tag:blogger.com,1999:blog-8139456428769690123.post-53501649711948480102023-09-22T14:48:38.563+01:002023-09-22T14:48:38.563+01:00This comment has been removed by a blog administrator.Maria Halehttps://www.blogger.com/profile/01611403429466287179noreply@blogger.comtag:blogger.com,1999:blog-8139456428769690123.post-42476149983840449092022-10-23T10:17:39.021+01:002022-10-23T10:17:39.021+01:00Thank you for your response to my blog. I hope wha...Thank you for your response to my blog. I hope what we both write and share helps others with a chronic illness. The song by Queen has only just been released in the last week and seems to have been forgotten until now. It's quite possible that Freddie Mercury wrote about his own challenges and that's why I find the words very poignant and I can relate to them. - Ros French femmehttps://www.blogger.com/profile/16814891305960111979noreply@blogger.comtag:blogger.com,1999:blog-8139456428769690123.post-16259985811023368362022-10-22T16:50:41.002+01:002022-10-22T16:50:41.002+01:00Thank you for the very thoughtful review of my boo...Thank you for the very thoughtful review of my book! I'm so glad you found it helpful, though sorry you are suffering with this crazy disease, too. I would say it's amazing our stories are so alike, but I've heard very similar stories from so many patients!nI love that you included your own poetry here, too. I found it very moving and relatable. And I LOVE Queen but had never heard of this song before! Do you know if Freddie Mercury wrote it about his own medical challenges with AIDS? It certainly fits. Thank you for sharing all of this - <br /><br />Sue<br /><a href="https://livewithcfs.blogspot.com/p/my-book.html/" rel="nofollow">My Book: Finding a New Normal: Living Your Best Life with Chronic Illness</a>Sue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-8139456428769690123.post-49197554175890691522022-06-30T17:51:01.666+01:002022-06-30T17:51:01.666+01:00I don't know if you're open to reviewing f...I don't know if you're open to reviewing fiction with an ME main character - I wrote it partly with the concept of using fiction to let a reader live another life, something fiction is very good at, to develop empathy (without having to become ill). Taking a reader from sympathy (poor person with a disease!) to deeply feeling what it's like (SIDE EFFECT - not main purpose) to live with the disease, is my secondary aim; the first, as always, is to write something entertaining and compelling in itself.ABEhrhardthttps://www.blogger.com/profile/17211038591900883672noreply@blogger.comtag:blogger.com,1999:blog-8139456428769690123.post-27556716738498069302022-06-30T13:40:33.882+01:002022-06-30T13:40:33.882+01:00Thank you for your comment. I think it's impor...Thank you for your comment. I think it's important to read and share other people's experience of living with a chronic illness. as it helps us to feel less alone and increases better awareness and understanding. French femmehttps://www.blogger.com/profile/16814891305960111979noreply@blogger.comtag:blogger.com,1999:blog-8139456428769690123.post-37501974344161563482022-06-29T15:34:25.287+01:002022-06-29T15:34:25.287+01:00Great Review. Thank you for sharing this. More &...Great Review. Thank you for sharing this. More & more people with ME/CFS need to see reflections of their experiences in a way that validates their lives<br />EastsideMhttps://www.blogger.com/profile/14907778846976001597noreply@blogger.comtag:blogger.com,1999:blog-8139456428769690123.post-50781051167133007482022-03-01T19:55:56.899+00:002022-03-01T19:55:56.899+00:00This comment has been removed by a blog administrator.balidynihnathttps://www.blogger.com/profile/05978032054919635901noreply@blogger.comtag:blogger.com,1999:blog-8139456428769690123.post-86346603008608968052022-01-25T21:45:29.862+00:002022-01-25T21:45:29.862+00:00Gosh there are no words . Our illness is the worst...Gosh there are no words . Our illness is the worst she suffered so badly and abuse from Medics.😢<br />At least now she is at peace, and no more pain. All my love and prayers.😢🙏❤️XxxUnknownhttps://www.blogger.com/profile/04882603471142593050noreply@blogger.comtag:blogger.com,1999:blog-8139456428769690123.post-11421252185387764952022-01-16T22:41:27.537+00:002022-01-16T22:41:27.537+00:00i have had m.e. for over 15 years .then LAST YEAR...i have had m.e. for over 15 years .then LAST YEAR BEFORE LOCKDOWN I was Diagnosed with .Fibromagyia.it is a DISGRACE when FAMILY/FRIENDS do NOT UNDERSTAND/HELP /AWARE ..it is BAD Enough Peoples views/judgements very very SNOTTY NOSED ,.do NOT see the every day effects ..my blog.http;//mark-kent.webs.com twitter.supersnopper MARKmarkhttps://www.blogger.com/profile/12917942789962293012noreply@blogger.comtag:blogger.com,1999:blog-8139456428769690123.post-15501860157300372962021-08-06T13:52:50.705+01:002021-08-06T13:52:50.705+01:00Hair Care<a href="https://images.google.sc/url?q=https://thewebserv.com/" rel="nofollow">Hair Care</a><br />Anonymoushttps://www.blogger.com/profile/05170389295715423639noreply@blogger.comtag:blogger.com,1999:blog-8139456428769690123.post-8506507912979875942021-05-12T15:09:22.713+01:002021-05-12T15:09:22.713+01:00💜💜Miranda Brewsterhttps://www.blogger.com/profile/00075350752508870801noreply@blogger.comtag:blogger.com,1999:blog-8139456428769690123.post-61484390777625065612021-02-03T08:56:36.315+00:002021-02-03T08:56:36.315+00:00Thank you Christine xxThank you Christine xxFrench femmehttps://www.blogger.com/profile/16814891305960111979noreply@blogger.comtag:blogger.com,1999:blog-8139456428769690123.post-70457401877820156462021-02-02T16:32:37.025+00:002021-02-02T16:32:37.025+00:00Merci beaucoup, femme Francaise. XxMerci beaucoup, femme Francaise. XxChristine https://www.blogger.com/profile/13114817926600763911noreply@blogger.comtag:blogger.com,1999:blog-8139456428769690123.post-40422122235085177122021-01-25T14:25:40.564+00:002021-01-25T14:25:40.564+00:00Yes so sad to see a friend suffering. Thank you fo...Yes so sad to see a friend suffering. Thank you for your prayer French femmehttps://www.blogger.com/profile/16814891305960111979noreply@blogger.comtag:blogger.com,1999:blog-8139456428769690123.post-60148963385934659732021-01-25T09:51:32.677+00:002021-01-25T09:51:32.677+00:00So sad to see how much my friend was suffering..Lo...So sad to see how much my friend was suffering..Lotta was the most happiest person..A pray for you all outhere 🙏Evgenia https://www.blogger.com/profile/14252771430971290683noreply@blogger.comtag:blogger.com,1999:blog-8139456428769690123.post-41337471369292149942020-06-26T16:19:57.280+01:002020-06-26T16:19:57.280+01:00Just wanted to let you know that this article was ...Just wanted to let you know that this article was a readers' fav on my Twitter feed for the week and I've compiled it here. Keep up the great work! :)<br /><br />https://www.achronicvoice.com/2020/06/26/depression-chronic-pain-art-219/A Chronic Voicehttps://www.blogger.com/profile/13455264988801107836noreply@blogger.comtag:blogger.com,1999:blog-8139456428769690123.post-55475809110621946552020-01-24T15:09:39.149+00:002020-01-24T15:09:39.149+00:00This comment has been removed by a blog administrator.Micheal Alexanderhttps://www.blogger.com/profile/05475927639200371365noreply@blogger.comtag:blogger.com,1999:blog-8139456428769690123.post-17648942267983935232019-12-30T13:21:37.688+00:002019-12-30T13:21:37.688+00:00Your article is extremely useful.Everyday your dia...Your article is extremely useful.Everyday your diary inspire ME nice deal} and helped to develop one thing new like I actually have developed a replacement app <a href="https://healtheals.com/apple-nutrition/" rel="nofollow">green apple nutrition fact</a> this is often great and pleasurable.Thanks for the awing posts , please keep updated often.<br />Lilyhttps://www.blogger.com/profile/15473174070943861361noreply@blogger.comtag:blogger.com,1999:blog-8139456428769690123.post-3175516694469672532019-11-04T10:32:43.616+00:002019-11-04T10:32:43.616+00:00Thank you so much Amy xxThank you so much Amy xxFrench femmehttps://www.blogger.com/profile/16814891305960111979noreply@blogger.comtag:blogger.com,1999:blog-8139456428769690123.post-76639450517144594852019-11-04T10:32:16.772+00:002019-11-04T10:32:16.772+00:00Thank you for your comment. I wrote this poem a lo...Thank you for your comment. I wrote this poem a long time ago and sometimes when I go back I rewrite a word or two or maybe a line. In this case the poem could end with the line 'I'm not strong any more' xxFrench femmehttps://www.blogger.com/profile/16814891305960111979noreply@blogger.comtag:blogger.com,1999:blog-8139456428769690123.post-50737560974585984962019-11-03T12:05:31.524+00:002019-11-03T12:05:31.524+00:00I think it is perfect, beginning to end, exactly h...I think it is perfect, beginning to end, exactly how I and so many feel, thank you for sharing ❤️Amy Dhttps://www.blogger.com/profile/07548691061437473588noreply@blogger.comtag:blogger.com,1999:blog-8139456428769690123.post-21643046066096761552019-11-03T10:30:18.464+00:002019-11-03T10:30:18.464+00:00Very well said and I love the way you have worded ...Very well said and I love the way you have worded the poem except maybe the last line although I do suspect it could apply to some but not all x Anonymoushttps://www.blogger.com/profile/12985773966985198622noreply@blogger.comtag:blogger.com,1999:blog-8139456428769690123.post-10614828730129264132019-07-03T15:24:45.219+01:002019-07-03T15:24:45.219+01:00I suffer as you do. I can be in a warm shower. My...I suffer as you do. I can be in a warm shower. My legs are do cold, but I'm sweating like crazy. Like you, I flip from hot to cold in an instant. I've had this even as a child, but it has increased in intensity throughout the years. I have Fibro, severe Arthritis, Dystonia, and Chronic Fatique. I love your poem!MissMaryhttps://www.blogger.com/profile/11754632159472014728noreply@blogger.comtag:blogger.com,1999:blog-8139456428769690123.post-54417197813012954152019-05-12T08:36:49.928+01:002019-05-12T08:36:49.928+01:00Thank you that's so kind.Thank you that's so kind. French femmehttps://www.blogger.com/profile/16814891305960111979noreply@blogger.comtag:blogger.com,1999:blog-8139456428769690123.post-66844912943785584782019-05-10T09:12:04.033+01:002019-05-10T09:12:04.033+01:00Hello just wanted to let you know that this post w...Hello just wanted to let you know that this post was a readers' fav on my Twitter feed for the week, and I've listed in the Top Health Tweets here. Keep up the fab work!<br /><br />https://www.achronicvoice.com/2019/05/10/issue-160-top-health-tweets/A Chronic Voicehttps://www.blogger.com/profile/13455264988801107836noreply@blogger.com