tag:blogger.com,1999:blog-8139456428769690123.post3563953270883119264..comments2023-09-22T15:52:15.541+01:00Comments on My A-Z of M.E. (Myalgic Encephalomyelitis) : MY BRAIN IS MISSINGFrench femmehttp://www.blogger.com/profile/16814891305960111979noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-8139456428769690123.post-41334600398158535372018-04-03T17:08:09.625+01:002018-04-03T17:08:09.625+01:00Thank you for your kind comment Char. I like to pr...Thank you for your kind comment Char. I like to provide information in my blogs. I will take a look at your bloggers group. French femmehttps://www.blogger.com/profile/16814891305960111979noreply@blogger.comtag:blogger.com,1999:blog-8139456428769690123.post-53412920368317539872018-04-03T13:25:45.455+01:002018-04-03T13:25:45.455+01:00Great post! So much excellent information. Brain f...Great post! So much excellent information. Brain fog can be quite funny at times, making us do silly things, but it is also extremely debilitating and frustrating - like when you can't make yourself understood, ask for help, feel lost and confused even in a familiar place, or can't even understand your own language!<br /><br />Glad I found your blog. I'd love to have you join our ME bloggers group to share your content, details on my blog if you're interested.Char | ChronicallyHopeful.comhttps://www.blogger.com/profile/08359564272438038013noreply@blogger.comtag:blogger.com,1999:blog-8139456428769690123.post-88852979230168991132018-03-09T14:31:21.679+00:002018-03-09T14:31:21.679+00:00Debbie these symptoms are common amongst people wi...Debbie these symptoms are common amongst people with M.E. and you are definitely not alone. However they are not so easily understood or explained. I too find mediation helps. French femmehttps://www.blogger.com/profile/16814891305960111979noreply@blogger.comtag:blogger.com,1999:blog-8139456428769690123.post-16461984405385326142018-03-09T14:08:17.650+00:002018-03-09T14:08:17.650+00:00Thank you. I feel relief that I'm not alone in...Thank you. I feel relief that I'm not alone in having these debilitating and embarrassing issues. I majored in literature (with distinctions) at the age of 19, and 18 months later, could hardly read a paragraph. I haven't read a novel in decades. Because I can't explain that to people, or discuss the latest reads, or follow through on people's reading suggestions, I avoid talking to people who read books! (I've been housebound for most of the past 40 years, and so it's not often that I encounter someone who is a reader... 😉 Now, I've learned, through eastern belief systems, that the thinking brain can get in the way of a connection to the greater presence of life (what people call God?), I have shed my sense of shame and guilt, and practise meditation instead. The brain fog makes it quite "trippy". ;-)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8139456428769690123.post-60836833309974283892018-03-08T09:39:25.923+00:002018-03-08T09:39:25.923+00:00Thank you Colleen for your comment. That's int...Thank you Colleen for your comment. That's interesting to hear that antivirals have helped you. Of course it's a balance between keeping our brains active but not overdoing it and leading to post exertional neuroimmune exhaustion. I agree that a sense of humour helps. French femmehttps://www.blogger.com/profile/16814891305960111979noreply@blogger.comtag:blogger.com,1999:blog-8139456428769690123.post-20675550472014792052018-03-07T17:20:35.769+00:002018-03-07T17:20:35.769+00:00Great blog.
28 years at this and I have found t...Great blog. <br /><br />28 years at this and I have found that some medications exacerbated this fog. I was also a lot worse in the early years before antivirals gave me some improvement. <br /><br />What I discovered is as I saw improvement I was able to rehab my brain using various computer games and crosswords. At first I could barely keep track of what the clue was while I looked for where it was in the puzzle. Doing crosswords helped improve my concentration and word finding. It was a long slow process... but worth the effort over time. Unfortunately, mental work can lead to post exertional neuroimmune exhaustion as does physical activity. So moderation in all things and keeping a sense of humor have helped me cope.Colleen Steckelhttps://www.blogger.com/profile/10716644183289384963noreply@blogger.com