So what have you done in May to raise awareness?
I took a bit of a back seat this year, for personal reasons.
However I know there has been a lot of great awareness raising and initiatives during May.
I started the month with a blog and I'm going to end it with a blog.
I just want to say that raising awareness needs to continue all year round and not just in May.
But we need to keep fighting to gain the respect, understanding and treatment that we all need and deserve.
On a personal note I have recently been made fully aware that, even when you have better days, think you have turned a corner and are able to do more it doesn't mean that you are on the road to recovery.
M.E. is a remitting and relapsing illness.
So don't be fooled like me and think you have beaten it.
It has a way to surprise you and come back with a vengeance.
It's waiting in the wings just to leap in and re-assume it's role in your life.
So treat it with respect. Don't do too much when you start to feel better. I know it's easier said than done. We all fall into the same trap at times. Sometimes we have no choice as we have to deal with 'life' and all that comes along.
For me the two strategies that help are rest and pacing.
The problem is that it can be a life long illness for some and it's so hard to manage.
I do believe that there is some hope on the horizon, especially for those young or newly diagnosed. I try to remain optimistic but of course there are days when that's so hard.
In the meantime I will continue to raise awareness and understanding through my poetry. I am well on my way to another book of poems about M.E.
So watch this space!
I hope you will join me in the continuation to raise awareness and understanding. Every little helps. Why not share this picture so that others can have some idea of what it feels like to have M.E......
And of course you can share my poems and my blogs.
Well that's about all for now.
From the French Femme